As I’ve mentioned before I have recently been diagnosed with ulcerative colitis. Google at your own risk, trust me. I was diagnosed while pregnant with Baby. It was a scary time but we survived it and couldn’t be more grateful. Unfortunately, I had another what they (the doctors) call “flare” for a number of weeks, from the end of November until about Christmas time, until the steroids kicked in a settled things down. Again, another scary time but again, I survived and have learned some valuable lessons about taking things for granted.
Stress is a major factor with this disease so it is incredibly important that I maintain a certain calmness in my life. This is no simple feat, it takes a lot of hard work and balance. Babe has been incredibly supportive with this need and Baby is just perfect. They both work with me to keep my anxiety down and make sure that life is easy. I do yoga at least once a week, I have my sunday nights, and enough sleep to keep cool. However, even with all of the efforts we’ve made there are no guarantees.
The steroids have run their course and the medication that I’ve been taking to keep things cool doesn’t seem to be working. I am about to enter another ‘flare’. At my last doctors appointment, last week, I was told that if I flared again there was only one more medication to try before surgery. It is supposed to be a wonder drug. It will also cost over $15,000 a year (thank g*d for benefit plans for the coverage), so I really hope that it works as it looks like it’s the only option that I’m willing to try. Anyway, in an effort to accept my reality I have put together a short list of things that I’ve learned to not take for granted. I wanted to have 10 things on this list, but I couldn’t come up with anything else after 6 – Baby woke up from her nap. 🙂
Here is my list:
1. Enjoy every meal consumed, you never know when you won’t be able to eat and value every liquid you drink, the feeling of never-ending thirst is horrible.
2. LOVE every minute you spend with Baby & Babe doing anything & everything, time in the loo isn’t as much fun.
3. Breathe, you will get through this.
4. Allow yourself to get out of the house, you get stir crazy when you can’t leave your own home.
5. Spend as much time enjoying the company of others, you will miss people when you’re stuck at home.
6. Laugh, life is still funny and this too can be laughed at.
This is one way to lose the baby weight!
I have a great life, please don’t read this thinking “poor her”. I have a fantastic family, my parents are great, my siblings are pretty decent. There really isn’t much that is worth complaining about, but I do anyway. Babe says that he hopes my blogging isn’t me just bitching about life, friends, health, and he hopes that I don’t make people depressed. I hope so too! I’m still getting the hang of this blogging thing and learning how to filter. Mind you not filtering is way more fun!
If you’re not thinking “poor her” than you’ve clearly taken my advice at the beginning and didn’t Google UC. Thank you for listening to me, not very many people do!
What gets you through stressful times? Would you change anything to my list of 6 things? What am I forgetting?